My Very Special Child
(A Special Diary)
At the dawn of November 22, 2005 at
exactly 4;45 a.m., he came into this
world with a chance of zero probability. At 1.95 pounds, Adi was placed in an
incubator filled with medical apparatus which covered most of his body, that almost
shattered my hopes upon seeing my four- day- old first-born. He could not even
suck the colostrum he needed for those lips were so little to open for a breastfeed. Instead, he was managed to feed
on a dropper. Since the time I met him, a single moment of my existence was a contemplation of prayers in sobbing. No tear
missed whenever his father and I gazed at him in the angelic corner of the
nursery room. No sound of him was heard among his noisy crowd, only murmurs of
cardiomegaly. He was pale, immobile, timid, unclosed fists, believed to have
Edward’s Syndrome. I wanted to research about it but I was afraid of the truth
of any discovery, so better be ignorant.
He needed to see his pedia in a weekly routine. Each meeting was a surprise for
it enabled us to perceive a new if not another disability. His new born
screening result was normal, but his
weight stagnated until the fourth month, so he needed to undergo different lab
tests_ CT Scan, ultrasound, x-ray, and a number of blood sampling. To my
surprise, chromosomal test was normal.
He was a hospital-friendly baby. It
was not ordinary for a month that he failed to lay down in the hospital crib!
Watching him grew ill each day put me into kneeling that words for prayers
became a litany of thanking, asking, and begging moment by moment, time to
time, day by day up to when I could no longer say those words but scribbled
them on while pleading. ”God, You shouldn’t have been permitted my vows if the
sacrifices would be done unto my child!
No focus, no motor progress, no
talking, very slender, but sensitive. Never heard him crying only tears flowing
on a saintly looking sad face. I thought I was financially unstable but getting along the fees of these pedias_ cardiologist,
hematologist, neurologist, pulmonologist internist plus physical therapist, radiologist among others, their expertise made me realized my son had brought me blessings.
At two years old, he tried to sit on
his own and made it. At three, he did not walk on foot but made crawling. At
four, he managed to grasp on his crib’s braces until he was able to stand on
countless attempts, at last he made it. This had put me into kneeling again
with arms widely open upward, ”God, am sorry for my worthless pleas, may I take
back what I have been said and done, I beg You to bestow on me for a long time
my son! Thank You for the joy he could only fill unto my heart. Please!”
I named him after his grandfathers_ my
father Francisco and my hubby’s father Alijandro_ so he got Frans Aldrew, Adi
by nickname. His father never missed a grand celeb of his birthday as the
family’s thanksgiving for a blissful year having Adi around. The children's birthday songs and greetings were accounted for a sprouting bud of life__a miracle.His developmental
doctor rated his disability at age 10 he was just 1 year and 8 month-old.
Whenever he was confined in the hospital, he was so loved by the doctors and
the nurses for they could not find any tantrum over their treatment to him. He
willingly gave his arm with a congenial gesture, rarest case among his group,
medically evaluated. In SPED schools, teachers were amazed of his sweetness, friendliness,
and generosity. At home, he had the most hospitable job_ to welcome the
visitors with a waving “hi”, to offer them snacks or to lead them to the dining
table, and most importantly to hand a mic for a karaoke jam.
As I watch Adi growing strong,
sociable, religious, and worthy I could proudly say, “God, I am the most loved
and blessed mother bestowed to a son like Adi.”His cardiologist who once
predicted him to last only for two years or to any other medical diagnosis he
was proven of or might have, my heart strongly believes in faith that God is
the only Healer.
Mama Judith
(February 20,2018)
